Trina’s Job Hunt:Perseverance Pays Off

In honor of National Disability Employment Awareness Month, I invited a Seeing Possibilities reader to share her story here in hopes that it will inspire and encourage other job seekers. Trina Bassak has a doctorate in Physical Therapy with 25 years of clinical experience. She enjoys yoga, gardening, and roller skating. Trina and her husband are Master Gardeners and 4-H leaders. If you would like to contact Trina, her email is: tdbassak@frontiernet.net

About Myself

I was born with glaucoma which was diagnosed at age six and already had tunnel vision. I had a retinal detachment after yet another glaucoma surgery the summer after high school and went to college with low vision.  I always knew I wanted to be in a medical career. Once I was exposed to physical therapy, that was what I wanted to do without question.

Some accommodations were made after more glaucoma surgery in college (assist for reading and special bright-colored markers in cadaver lab). Then two years after graduation, employed in an outpatient clinic, my other retina detached after glaucoma surgery again. I continued to work totally blind and then returned to school in 2009 to get my doctorate of physical therapy (DPT) degree.

I worked and went to online school for three years and graduated in 2011. I used my computer with JAWS, Open Book OCR and had a reader to assist with the school work. The college let me take extra time for testing. I also went to massage school as well and graduated in 2000. I was afraid advancing technology in my field may not be accessible and this might force me to change professions. So I wanted to prepare.

The Job Hunt

I have had a difficult year searching for a job and it is finally over. The frustration level was much more than I ever imagined and I thought maybe sharing it with others may help someone on the verge of giving up on their own job hunt.

I have been a physical therapist for 27 years in Pennsylvania and for 25 of them, I have been totally blind. I left a long-term position to relocate to Florida, for family reasons, thinking I would find another position in a reasonable amount of time. I moved to a very rural area and the people were not accepting of outsiders, yet alone a person who is blind!  There were only a few clinics within 20 miles and no public transportation. I didn’t even make it to the interview stage and that was without disclosing my visual deficit!

My husband and I decided it was not the area for us and we began to investigate opportunities in Colorado. There were more job openings, great weather in the southern region, gorgeous mountains and friendly, accepting people. This led to a second move after only 7 months!  I applied online, made phone calls and contacted agencies that I thought could be useful. I even started looking in other related professions such as healthcare advocate.

I interviewed on the phone and even went to Colorado twice before moving for in-person interviews. One company flew me out and provided us with a car and hotel accommodations. I passed all their work lift tests and drug screens and thought I would get an offer. They declined me after 6 months, claiming they could not accommodate me. This was one of many rejections – at least 12-15…I stopped counting.  I started looking at other career options again. I applied online and contacted people with experience working from home. This included customer service, writing articles, and data entry. I really love my profession and working with patients, but was getting discouraged by the many barriers to employment.  I kept remembering the saying “insanity is doing the same thing over and over again and expecting different results.”   At this point, I was frustrated, angry, getting depressed and cried a lot more than I ever had in my life.  I very much identified with being a physical therapist and my feelings of self-worth and self-esteem depended on my work, I came to realize.

Getting Discouraged…

My husband and I argued all the time and things were not going well.  At a very low point, I knew I had to do something. I then decided to take any position I could find and started looking at both therapy and non-therapy positions. On an impulse, I started calling chiropractors who seemed to work in conjunction with physical therapists. My focus was still on working in an outpatient clinic setting, which I believed would be the most accessible for a blind therapist. Or was it…?

Got the Job!

Finally, I received a call from an operations manager for an outpatient clinic and home health agency called AIM Home Health in Pueblo Colorado. We talked a bit and I learned they did not have an opening in outpatient. He wanted to meet me and discuss the opening in home health, even after I disclosed my visual limitations.  After a few meetings, I was offered a position as a home health therapist and I accepted the job.  The company offered to provide me with a driver who also would assist with computer work and home orientation, and a company car to do in- home treatments.

I contacted the Department of Vocational Rehabilitation upon arriving in Colorado and they started my application process immediately. While I was waiting to be accepted, I found a job on my own, which changed my plan with them. Instead of helping me obtain a position, they were now assisting with work accommodations. They sent an access technology specialist to assess the computer system which is already partly accessible. I am working out the necessary accommodations, learning the job, and orienting myself to new environments. It all has definitely been an adjustment for me.

Trina doing physical therapy in a client's home

Trina with client Nicole Turner

The biggest adjustment has been working in new environments-not knowing where everything is all the time as I did in an outpatient clinic. I don’t have control of the situation as I did previously but I still have to present myself as a confident and competent therapist. It seems to be going okay so far but I am constantly striving to make it better. My assistant and I are getting used to each other and she is learning how to provide me with directions. She is not used to being around a blind person and I am doing silly things since she doesn’t know how to tell me where things are.

Soon we will fall into a routine.  I am grateful for her help and the opportunity this company has provided me. I am a good therapist and just needed to be given a chance and some accommodations. I keep wondering what I would be doing now if I had given up the search. Instead of doing the same thing over and over again, I’m glad I tweaked my search and opened myself up to new opportunities. It feels like the right place for me now.

Don’t Give Up!

Anyone in search of a job needs to be persistent and look at all opportunities and options, even if they don’t seem feasible.  I was on the verge of giving up but chose to continue forward. Now I completely understand why many people do give up.  During this difficult process, something in job preparedness needs to be done every day. Whether it is working on a resume, searching for openings online or in newspapers, making phone inquiries, networking, expanding your knowledge by taking online courses, or reading articles of interest…just do something! Perseverance will pay off; maybe not in the way you initially thought but open yourself up to new ideas and experiences.

Trina in the tomato patch

Trina in the tomato patch

 

Reading to Enhance Mental Health: Bibliotherapy

Reading as a Healing Experience

Most of us become readers at an early age and discover the wonders of a good story. We learn to interact with books in order to learn and grow. Characters come alive to us as we relate to their experiences. Sometimes reading is for pleasure or escape and other times it is for the disciplined acquisition of information. No matter what, our engagement with literature and written word has the potential to change us, calm us, inform us, inspire us and heal us. In its most simplistic form, this is known as bibliotherapy. Exposure to books, poetry, writing, and even film and videos can be therapeutic and beneficial in helping us process our own life experiences. In other words, literature can be used to help us figure life out, heal emotional traumas, and change thoughts and behavior. Reading can be a healing experience.

As I was learning to adjust to vision loss, I was drawn to read books about blindness and books written by authors who were blind. I found it very helpful and motivating to enter the narratives of others who were sharing their own stories of vision loss. Some books were informational, some humorous, and others deeply moving. I realized that the cumulative affect was that I understood more about blindness and my feelings about it were changing. Reading books on blindness, memoirs and biographies of blind writers has had a very positive influence on my ability to adjust and cope with vision loss.

Reading Books on Blindness

It has long been understood that literature “heals the soul” and the use of bibliotherapy has evolved to become quite complex in its application to psychiatry and health care. Consider a bit of reading therapy for yourself as a way to deal with vision loss. With the help of the Peer Advisors at VisionAware, I  put together a reading list of books for this purpose. It is not exhaustive by any means but meant to get you started. Most of these titles are available through the National Library Service in audio or braille formats. Newer titles are not yet available through the NLS. Many are available in e-book formats through your favorite booksellers. (Kindle, Nook, etc.) Another way to find such books on blindness is to search the NLS collection using “blindness” as a key word. Whether you are using your eyes, ears or fingers to read, may it be a rewarding and therapeutic experience.

If you are interested in learning more about the National Library Service for the Blind and Physically Handicapped and the Talking Book Program, go to: hhttp://www.loc.gov/nls/index.html

24 Books on Blindness

  1. Touch the Top of the World by Erik Weihenmayer- e-book, NLS
  2. Cockeyed: a memoir by Ryan Knighton- e-book, NLS
  3. Blindness: What it is, What it Does, and How to Live with it by Thomas Carroll-NLS
  4. Lessons I Learned in the Dark by Jennifer Rothschild- NLS
  5. Touching the Rock: An Experience of Blindness by John Hull- NLS
  6. Living on the Edge of Twighlight by Doug Green- e-book
  7. Now I See You: A Memoir by Nicole C. Kear- e-book
  8. Mobility Matters: Stepping Out in Faith by Amy Bovaird- e-book
  9. Out of the Whirlpool: A Memoir of Remorse and Reconciliation by Sue Martin- e-book,NLS
  10. The Adversity Advantage by Erik Weihenmayer and Paul G. Stoltz-  e-book,NLS
  11. Thoughts on Blindness: One Spouse’s Perspective on Losing Vision and Living Life by Becky LeBlanc-The Carroll Center Books on Blindness
  12. Ordinary Daylight: Portrait of an Artist Going Blind by Andrew Potok- e-book, NLS cassette
  13. A Matter of Dignity: Changing the Lives of the Disabled by Andrew Potok-NLS
  14. ROCKS:The Blind Guy at the Lake by Thomas P. Costello-Amazon print, The Carroll Center Books on Blindness
  15. Focus by Ingrid Ricks- e-book
  16. How Do You Kiss a Blind Girl by Sally Wagner-NLS
  17. The Way We See It: A Fresh Look at Vision Loss – anthology from Vision Loss Resource-print, e-book available at http://www.visionlossresources.org
  18. Do You Dream in Color? By Laurie Rubin-NLS
  19. And There Was Light: Autobiography of Jacques Lusseyran, Blind Hero of the French Resistance by Jacques Lusseyran-NLS
  20. Not Fade Away by Rebecca Alexander
  21. The Unseen Minority: a social history of blindness in America by Frances A. Koestler-NLS
  22. Self-Esteem and Adjusting with Blindness: the process of responding to life’s demands by Dean and Naomi Tuttle-NLS
  23. Shades of Darkness: a black soldier’s journey through Vietnam, blindness and back by George Brummell-NLS
  24. Undaunted by Blindness: concise biographies of 400 people who refused to let visual impairment define them by Clifford Olstrom, Perkins School for the Blind-NLS

Share Your Favorite Therapeutic Book

Is there a book you have read that helped you adjust to vision loss? How did the book help you? Or is there a book about a blind person that was encouraging or motivational? What about books written by a blind or visually impaired author? Share your favorite reads below.

                                                Image result for books

Ski for Light Focuses on Abilities Not Disabilities

I just returned from the 2015 International Ski for Light event in Granby Colorado. It was an amazing week of cross-country skiing under big, blue skies in the Rocky Mountains. We enjoyed well-groomed trails, sunny days, beautiful snow, and crisp mountain air.  The  best part though was connecting with a group of inspiring people.

My first day on skis-note the tracks in the snow

My first day on skis-note the tracks in the snow

A First Time Skier

Ski for Light is a non-profit organization run by all volunteers, which enables visually impaired and mobility impaired individuals to enjoy a week of skiing with a personal guide. There were 100 dis-Abled skiers, 100 sighted guides and a host of other volunteers who make the week go smoothly.  I am so thrilled to have had this opportunity to learn to ski for the first time in my life. I had no idea whether I would be able to do it but as it turns out, I can…even at my age and with the little bit of vision I have left! It was a memorable week which taught me I can do more than I think I can.

A Full-Inclusion Program

I learned about the program from a friend who is also keen on new adventures. She has been attending Ski for Light for many years. In my retirement, I am determined to try new things, learn new skills and get fit. So this opportunity was exciting and I did not hesitate to sign up. It spurred me on to join the gym and exercise regularly so I would not embarrass myself. I arrived in fairly good shape, though there is always room for improvement. I worked hard at learning the basics of cross-country skiing with my experienced guide/instructor Lynn Cox. She has been coming to SFL for many years, volunteering her time and at her own expense, to guide and teach visually impaired skiers. The guides are trained to work with the visually impaired and most are accomplished skiers who can share their expertise. We are treated with respect, dignity, and full inclusion and it is easy to forget you are visually impaired while at SFL. And that is a wonderful thing!

Pushing Past Personal Limits

Well, as it turns out, I have a special talent for falling safely and popping up quickly which I demonstrated over and over. This is an important skill, but it was not the one at which I wanted to excel. All week, I tried to fall less and ski more smoothly. I set goals for myself and worked to do my personal best each day. In the end, I improved every day; skiing farther, faster, and with fewer falls with the support and encouragement from Lynn at my side. That is what it is all about; learning your limits and then pushing past them! I have a lot more to learn and hope to master that darn “snow plow” next year.

Lynn and I after completing the 5k Rally-note the beautiful medals!

Lynn and I after completing the 5k Rally-note the beautiful medals!

A Well-Rounded Program

Ski for Light does a fantastic job of not only accommodating all levels of disabilities, but also all levels of skiing ability from the first timer to the serious race competitor. The guides are carefully matched with a skier in order to achieve the skier’s goals for the week. The program offers special interest workshops, evening entertainment and lots of opportunities to make new friends. The cost is subsidized by generous donor funds and scholarships are available for first-timers.

An Inspiring Week

I heard many inspiring stories and witnessed something special at SFL this week.  Harald Vik is 72 years old, deaf-blind and from Norway. He has been coming to SFL for years. Last year he was hit by a car while riding in a tandem bike event and sustained many broken bones. He was determined to be at this year’s event even if he had to use a sit-ski (for the mobility impaired skier). I met him out on the trails making his way on his own two legs after months of rehab and therapy. I call him “Amazing Harald.” And one bright day on the trails, I was passed up by a 93 year old gentleman who is totally blind and has been coming to SFL for more than 20 years. Way to stay young and active, Charlie! Yes, the dis-Abled skiers were inspiring to me…but so were the dedicated guides and volunteers who come back year after year with such a heart of service and passion for this excellent program.

Harald Vik and his interpreters from Norway.

Harald Vik and his interpreters from Norway.

Is Ski for Light For YOU?

Are you looking for a new adventure? Do you like to be active and learn new skills? Ski for Light may just be the thing for you!  Learn more at www.sfl.org  I will be there next year, will you?

[SFL logo]

Grateful for Talking Books

A book is a device to ignite the imagination.

–Alan Bennett

I am always amazed when I download a book on my BARD (Braille and Audio Reading Downloads) Mobile app and can immediately start listening. I browse the expansive BARD library, search for specific book titles or authors, add books to my “Wish List,” and begin reading in minutes. It is like magic, this wonderful bit of technology at my fingertips and I am so grateful to have access to reading material in this format.

 

Recently, I read that The American Foundation for the Blind (AFB) played an instrumental role in the development of the National Library Services for the Blind and Physically Handicapped (NLS), true to their mission to advocate for education and access to information for the visually impaired. This piqued my interest and I discovered a fascinating history of the NLS and the Talking Book Program. It can be found on the AFB website ( http://www.afb.org/info/75-years-of-afb-and-talking-books/2) and in the book “The Unseen Minority: A Social History of Blindness in the United States” by Frances A. Koestler (available through the NLS and AFB).

 

AFB and Helen Keller lobbied in the early days when Congress was asked to help provide funds for the production and circulation of braille books for the blind. The Library of Congress was tasked with this important work by the Pratt-Smoot Act passed in March 1931. Thus began decades of research, development, and partnerships which brought the wonders of books to blind people in America. As Helen Keller said when she testified to the House of Representatives,

 

“ …Books are the eyes of the blind. They reveal to us the glories of the light-filled world, they keep us   in touch with what people are thinking and doing, they help us to forget our limitations. With our hands plunged into an interesting book, we feel independent and happy.”

 

This legislation enabled Braille books to be systematically printed and loaned through regional libraries, funded by the government. As the numbers of blind adults grew as a result of war, there was increased need to produce and circulate more reading material efficiently. This coincided with new technologies being developed to record spoken word. AFB partnered with engineers, commercial recording studios, the Library of Congress, Helen Keller, and American Printing House (APH) to bring to fruition the Tallking Book Program in 1934. Through determined effort, recorded books and play back machines were made available through regional libraries to the visually impaired community all over the United States, on free loan. AFB began recording Talking Books for the Library of Congress and among the first were the Four Gospels and the Psalms, the Declaration of Independence, and some works of Shakespeare.

 

AFB continued to participate in the mission of bringing literature, magazines and other reading materials to the blind even as new technologies evolved. In 1936, Talking Books were made on Vinylite LP records played on phonographs built by blind workers in one of Roosevelt’s Work Progress Administration (WPA) workshops run by AFB. By the 1950’s, alternative formats were being developed to record books on cassette tapes and reel-to-reel. Talking Books on cassette tapes with the accompanying machines, were the preferred format distributed by the 1980’s. Then in the 1990’s, digital technologies drove the AFB and the Library of Congress to launch a test program to introduce digitally recorded books and digital players. The conversion to a digital Talking Book system began in 2007. From there, we have BARD Mobile today; books downloadable on digital players and i-devices instantly at our fingertips. Isn’t it grand, to be able to enjoy a book with clear digital technology, easy navigation, and available on-demand? It always causes me to pause to consider what an amazing time we live in and to give thanks to all the tireless efforts of those who went before us, advocating for this access to printed word. Thank you AFB and Helen Keller! And now , I must get back to my Talking Book-“State of Wonder” by Ann Patchett.

The old cassette player and newer digital player for Talking Books

The old cassette player and newer digital player for Talking Books

A Piano Concert: Pure Joy!

I attended a piano concert at Spivey Hall this weekend. Now I am a total novice when it comes to music of such caliber. But I do love music of all genres and enjoy the way it can influence my mood, inspire my thoughts, and elicit sweet memories all at once. That is indeed the power and magic of music and I have always wished that I could make music and understand it more fully. Though I am no musical connoisseur or musician, I was moved by the pure pleasure of this experience.

keyboard of a Steinway grand piano

keyboard of a Steinway Grand Piano

Richard Goode, a classical American Pianist, was phenomenal. We had 2nd row seats and I could see his outline as he entered the stage in his black suit and snow white hair. He seemed to have a commanding posture and bowed deeply to his audience. Then he got right to the business of stroking and caressing his beloved keys. Immediately, I was in awe and drawn into his music. He played a variety of classical pieces each with its own story, mood and interpretation, for which he is known. He is a true master and it was a privilege to be there.

black Steinwas Grand Piano

Steinway Grand Piano

I found myself closing my eyes so that I could “hear” the music better. And paradoxically, I could “see” the music better too. I got lost in it as each note, each piece rang out crystal clear in the perfect accoustics of this fine hall. I imagined some notes as fairies dancing on moonbeams, lithe and whimsical. Others were complex and booming like a thunderous storm in the night. In my mind’s eye, I followed each story as it unfolded in layers. The music appeared as light and gave me a sense of knowing.  I could hear, see and feel each piece in a way I have never experienced before. Is this part of losing one’s vision? Is it a function of being more attuned to my senses? Was it the sheer pleasure and appreciation of exquisite music? I do not know for sure but I can say with certainty that it was beautiful and haunting and it left me wanting more. 

Music notes with Light in the background

Music is Light…

Music is the mediator between the spiritual and the sensual life. ~Ludwig van Beethoven

Wise Old Trees

A sign which reads "Cathedral Grove-enter quietly"

Muir Woods, a sacred place

As a cellular and developmental biology major, I was fascinated by the diversity of life on this planet Earth. My fascination began in childhood as I roamed the fields and played in the creeks on our farm in Michigan. I loved to collect leaves and bugs, climb trees, watch ants, catch frogs and study flowers. I spent hours outdoors, communing with nature and it was always a spiritual experience for me. I am in awe of the variety of shapes and colors; species and phyla found in the plant and animal kingdoms. And beyond that, the fierce determination to survive and the ability to adapt are impressive. Take the majestic sequoias in Yosemite and their cousins the coastal redwoods in Muir Woods National Monument, where these ancient trees are protected.

It was a privilege to visit these special places. Even with my diminished vision, I was able to sense the grandeur as I entered Mariposa Grove and Cathedral Grove. I walked among trees that were as old as 2000 years, as tall as 379 feet, and as wide as 40 feet. Talk about behemoths! I felt very small and inconsequential; my life but a momentary breath in comparison. The forest’s gauzy shafts of light, swirls of purple shadows, melodious songs of birds, earthy herbal fragrances, and gurgling sounds of streams all intermingled to create an ethereal effect. Indeed, this is a natural cathedral, serene and solemn, commanding a hushed respect. These redwoods have stood for eons of time, against the forces of natural disasters, man and change. Sadly, they are the lone survivors of their species, now protected from the chaos and clamor of the outside world. I gratefully received the gifts of peace and tranquility they offered. And I came away with a few lessons from these wise old trees.

Ranger Lucy in uniform standing with me and my guide dog

Ranger Lucy, Muir Woods

Ranger Lucy from the Muir Woods park service gave a tree talk to visitors. She had 5 lessons we can learn from the redwoods:

  1. Stand Tall and Proud– redwoods are the tallest living thing on earth. They have survived fires, droughts and other hardships. They bear scars and cracks which testify to their struggle to live. Wear your scars of survivorship proudly and stand with dignity.
  2. Live in a “Cool” Place-redwoods grow best in the cool temperatures of the fog belt in California. They flourish in this moist environment. Find your special place in the world where you can thrive.
  3. Support Your Community-redwoods have a disproportionately shallow root system for their size. Their roots extend widely to tangle with other near-by trees in order to anchor themselves securely. Reach out to your community to establish connections with others.
  4. Grow a Thick Skin-redwoods have very thick, spongy and fibrous bark, rich in tannic acid which makes it resistant to fire, insects, and fungi. Allow your skin to thicken so you can resist the assaults of life.
  5. Surround Yourself with Family-redwoods have the ability to reproduce by sprouting burls and forming tightly grouped “family circles,” giving them a survival advantage. Stay close to family so they can fortify and strengthen you.

I am always looking for what nature can teach me. We live in such an exquisitely designed and spectacularly intelligent world. When we stop to observe and listen, we learn great secrets and truths. These sacred experiences teach us to respect and appreciate the beauty and gifts of the Earth.

A group of trees forming a family circle

Cathedral Grove, a family circle of redwoods

            

The clearest way into the Universe is through a forest wilderness.

John Muir

 

More Women Than Men Have Vision Loss

We all know men are from Mars and women are from Venus. But you may be surprised to learn there are gender differences when it comes to eye health. As a nurse and a woman with a visual impairment, I was surprised to learn there are more women than men who are blind or visually impaired. I have a degenerative eye disease called Retinitis Pigmentosa and have been legally blind since 1994. Though this condition is genetic and untreatable, there are many steps I take to preserve and protect my remaining vision. And I want to urge other women to take good care of their eyes so they will last a lifetime.

 
Women’s Eye Health Task Force reports that nearly two-thirds of all visually impaired and blind people in the world are women. More women than men suffer from eye diseases such as cataracts and macular degeneration. Research has shown there are gender specific symptoms, conditions and risks associated with vision loss. April is Women’s Eye Health and Safety Month. It is a good time to learn about women’s eye health issues.

 
Prevent Blindness America or PBA, reports similar figures for the U.S.; 66 percent of people who are blind or visually impaired are women. Women have more risk factors and thus, higher rates of vision loss than men. To make matters worse, a recent survey done by PBA revealed that only 9 percent of women realize these troubling facts. Many blinding eye diseases can be treated to prevent blindness and almost all eye injuries can be prevented. Therefore, women need to know what their risks are and learn ways to preserve their vision. PBA launched a new program called See Jane See: Women’s Healthy Eyes Now to educate women on their unique eye health needs.

 
Women are more likely to lose their vision for several reasons:
1. They live longer than men. Many eye diseases are age-related. As women live longer than men, they are more likely to be affected by conditions such as cataracts, macular degeneration and diabetic retinopathy. The rates of these diseases are increasing as the population ages, especially among women.
2. Some eye diseases are intrinsically more prevalent among women. For instance, dry eye syndrome which is believed to be linked to hormones is two to three times more common in women than men. Hormonal changes across the life span of a woman, from pregnancy to post-menopause, can influence vision changes. Women also have higher rates of autoimmune diseases such as lupus, rheumatoid arthritis, and multiple sclerosis. These conditions often have serious effects on the eyes, causing vision loss.
3. Social and economic factors can limit the frequency, quality and availability of health care for women. Since blindness and vision impairment can be prevented through early detection and treatment in some eye conditions, access to proper eye health care is believed to influence the greater rates of vision loss among women.
4. There are behavioral and environmental factors that can increase the risk of eye problems, though they are not specific to women. Among them are poor nutrition and obesity which can cause diabetes and subsequent diabetic retinopathy,a leading cause of vision loss. Smoking is also a proven risk factor for eye diseases, including cataracts and macular degeneration.

 
Women can help themselves and their families to lower the risks of vision loss by educating themselves on eye health and following these guidelines:
1. Get a comprehensive, dilated eye exam at age 40 and continue these exams every two years. If you have a family history of an eye condition or have been diagnosed with an eye disease, follow the recommended schedule of your eye doctor. If you experience any vision changes, eye pain, signs of infection, or eye injuries, see an eye doctor right away.
2. Quit smoking! Smoking affects many organs in the body and the damage is irreparable. Heart disease, lung cancer, stroke and other vascular problems have long been known as good reasons to quit smoking. Now you have another: blindness. Talk to your doctor about ways to “kick the habit.”
3. Maintain a healthy body weight. Start a weight loss or management plan to accomplish this goal. A healthy body weight lowers your risk for heart disease, stroke, and diabetes which can all cause loss of vision. Be sure to include daily activity in your plan as this has many health benefits that can protect your vision. Begin with 30 minutes of walking at least three times a week.
4. Eat an eye healthy diet, rich in colorful fruits and vegetables. Foods containing carotenoids and anti-oxidants such as green leafy vegetables, and fruits high in vitamin C, like oranges, strawberries and melons, may protect eye health. Also include foods rich in omega 3s such as nuts, salmon and egg yolks in your diet. There are supplements available to maintain eye health which contain these micro-nutrients, but it is best to eat fresh, whole foods in a variety of colors to get the best nutrition from your diet.
5. Protect your eyes from harmful sun rays. Invest in good quality sunglasses that have full UV-a and UV-b protection. In beach and snow conditions, darker tints are needed to filter out the harmful rays. Wear ball caps or hats with a wide brim for additional protection from scattered rays that reflect off of surfaces. Avoid prolonged periods in the sun without eye protection.
6. Use cosmetics and contact lenses safely. Wash hands and face thoroughly before applying contacts and cosmetics. Keep contact cases, make-up brushes and applicators clean. Throw away eye shadows, eye liners, and mascaras after three months. They expire and can become a breeding ground for bacteria. Do not share makeup. Follow the recommended wearing and cleansing schedules for your type of contacts.
7. Learn proper eye safety and first aid for home, work, and recreational environments. Wear protective eye gear such as goggles when using chemicals, tools, and machinery. It is important to protect the eyes from burns, cuts, and foreign objects that can damage the corneas and other structures of the eye.

Note the sunglasses and ball cap..who cares about "hat-hair??"

Note the sunglasses and ball cap..who cares about “hat-hair??”

My sister Adrianne and I, taking a morning walk in the beautiful Arizona desert

My sister Adrianne and I, taking a morning walk in the beautiful Arizona desert

 

 
Women live very busy lives juggling the demands of jobs, children, their households, and aging parents. We often play the caregiver role, but sometimes neglect our own self-care. You may take your child for eye screenings or an aging parent to the eye doctor, but when did you last have an eye exam yourself? The power to prevent vision loss is in your hands. Awareness and knowledge are the tools you need. Your sight is precious-save it! Treat yourself to an eye exam today.

 
Learn more at:
http://www.visionproblemsus.org
http://www.lighthouse.org/eye-health/womens-eye-health

Darkness

A story in fifty words…no more…no less. The Daily Post Challenge: Fifty

eyes

 

Tensely gripping the armrests, she received the ophthalmologist’s proclamation. The weight of it slammed into her chest.

 
“You will lose your vision…nothing can be done…”

 
He placed the heavy mantle of loss over her shoulders and a darkness settled upon her.

 
“Go now and live your life…” he said dispassionately.

Sophie Goes to the Zoo!

Sophie Goes to the Zoo! 

To fight the winter doldrums, my husband and I decided to go to the zoo. The weather was a sunny 77 degrees in Atlanta and we were hoping the animals would be out soaking up the sunshine. We had not been to the zoo since our children were young! I was excited to go as it would be a good opportunity to expose Sophie, my guide dog, to a new environment. I think it is important to continually provide her with new experiences and chances to hone her skills as a guide. Not knowing how she would do, I had a bit of concern too about the outing. I decided to use her Gentle Leader to help her contain her excitement and stay focused, which turned out to be a good idea.

Let's Go To the Zoo!

Let’s Go To the Zoo!

We joined the sea of people who had the same idea at the Atlanta Zoo. When in public with Sophie, I often hear people say to their children “We can’t pet the dog, it is in training” or people ask me, “Are you training her?” The answer is “yes” and “no”. Yes, a guide dog handler is always training their dog as a way of keeping them focused and performing well. Just like us, they are always learning new things and tweaking the dance they do with their partner. And no; she is a graduated guide dog and I am using her as a visually impaired person. I like to believe people think she is still “in-training” because I appear to move with ease and grace and seem to be a good “trainer”! Ha! After-all, I don’t “look blind”. But maybe they ask that because sometimes Sophie pulls an occasional “naughty dog” trick which seems unbecoming of a professional guide dog! (She did sniff out a plate of discarded French fries under a bench, but I caught her just in time!). The truth is probably both. But don’t be too quick to judge please! There are a few basic things about blind people and their guide dogs to understand:

1. Guide dogs are dogs, not machines. They have good days and bad days just like all of us.
2. They have already proven themselves to be up for the job by surviving a rigorous program of professional preparation. Have respect for their training.
3. Sometimes, a guide dog’s behavior is about being in a totally new situation or environment and they need instruction from their handler, who also may be in a new environment, having their own difficulties.
4. It is not always easy to “handle” a guide dog. It takes a lot of time, practice and patience to become a smooth working team. You may not realize the team is new and still getting used to each other.
5. Guide dogs are amazing creatures and learn to follow a series of commands. The handler is responsible for giving the commands clearly and the dog is responsible for carrying them out safely.
6. Many people who use guide dogs have some vision. There are “degrees” of blindness; we fall on a spectrum somewhere between 20/200 or “legal blindness” and “no light perception” at all. Many of us are going blind gradually. We may not “look blind” but we are not “faking it”. Why would we??
7. Though we love our dogs and enjoy many benefits of having them, they are first and foremost a tool of mobility to us.
8. The working team deserves respect; treat us with dignity. Ask for permission to interact with the dog. Talk to the person, not the dog.
9. It is best that you fight the urge to pet and interact with our guide dogs when they are in harness. Don’t pet and then excuse yourself by saying “Oh I just couldn’t help myself, she is so beautiful!”
10. Guide dogs do not do tricks. Sophie is a professional guide dog, not a circus animal. Her greatest “trick” is always evident – guiding me safely in a world full of obstacles and dangers.

Our day at the zoo was delightful! In spite of the crowd, Sophie was on her game. She weaved me through people gracefully and “followed” when I asked her to. She pulled at an eager pace and seemed intrigued by the animals. The tiger was especially interested in her and paced frantically at the fence. It made me nervous so we moved on. All the monkeys gathered on their platform to come see the “pretty dog”, squealing with delight. I enjoyed the sun on my face, the variety of smells and exotic sounds, and the occasional glimpses of the animals I was able to squeeze out of my vision. My husband patiently narrated scenes like the playful antics of the baby gorillas. Despite the many distractions, Sophie handled the challenge and excitement of our adventure like a pro. A good time was had by all! So get out of the house and do something new. It is good for the soul!

Sophie and Po the Panda

Sophie and Po the Panda

Sophie the lioness

Sophie the Lioness

From Personal Loss to Personal Growth

Blindness is a thief of much more than just vision. It robs you of many things and the impact is life changing. In the early stages of adjustment, loss is its anthem and grief is its mantle. Often depression is a close companion of vision loss because the losses pile up and overwhelm one’s ability and internal resources to handle them. This was my experience.

In the beginning, I was not even aware of all the losses that would come as a result of my vision loss, which served to protect me. There are many kinds of losses to catalog. There is the actual sensory loss of vision; losing touch with the physical world and missing out on information, colors and beauty. Shattered dreams are another significant loss. There are material losses caused by blindness like the loss of a job, car, home, or relationship. And there are internal, personal losses suffered such as self-esteem, confidence, social standing, identity, security and purpose in life. Indeed, blindness is a greedy thief that seeks to destroy…if you let it.

The task is to learn to accept, adjust, cope, and reaffirm life as a person who is visually impaired. The process is a long farewell to who you once were and how you used to do things. It is a tall order but the point is you can learn to adjust, limit your losses, and reclaim your life. Adjustment to blindness is a process; it takes time, training, and courage. It does not submit itself to a timeline or linear progression. According to The Hadley School for the Blind, there are 7 stages of adjustment to vision loss:
1. Physical and Social Trauma
2. Shock and Denial
3. Mourning and Withdrawal
4. Succumbing and Depression
5. Reassessment and Reaffirmation
6. Coping and Mobilization
7. Self-Acceptance and Self-Esteem

The Hadley course entitled “Self-Esteem and Adjusting With Blindness”, suggests that adjustment to blindness is an ongoing process as it calls for continually learning new techniques, revisiting issues of loss, reliving seasons of depression and reassessing goals and dreams. (I found this course to be very helpful.) Somehow it comforts me to know these stages. It gives me a roadmap and milestones to anticipate. There is much about the experience of “loss and grief” that is universal and it has been well-studied. It is reassuring to know that the myriad of powerful emotions I experience are all within the “norm” for a grieving person. And that eventually these emotions will give way to positive growth and progress. You never quite finish adjusting. This is also true of personal growth. We are always growing as a result of our experiences and life stressors. We are always adjusting to what life brings us; new stages, crisis, joys, challenges, set-backs and losses.

There was a time when I was not “adjusting” very well to my vision loss. I was angry and felt that life was unfair. I was afraid of the future. And I was depressed. In short, I was “stuck” and it affected every aspect of my life. Eventually, I sought counseling and began to understand the impact and implications of my vision loss. I learned about depression; that there was no shame in it, which freed me to address it. Through cognitive therapy, I learned that our emotions come from what we are thinking; negative thinking results in negative feelings. This seemingly simple concept was a key to turning my depression around. With my counselor, I worked through a book called “Feeling Good: The New Mood Therapy” by Dr. David Burns. This book proved to be a toolbox full of tools to deal with negative emotions which I have used over and over in life. It changed my thinking and perspective on my vision loss and many other things in life. It taught me to “reframe” the negatives, correct distorted thinking patterns, and find the good and positive side of things.

Joining a support group was an important step that helped me adjust to my vision loss. Meeting others who have successfully navigated through life encouraged me. It empowered me to hear their stories and learn from their experiences. It inspired me develop new plans and reach for new goals. It was the beginning of learning everything I could about my disease and what to expect in the future. Knowledge was an effective therapy and it moved me forward.

Another turning point for me was when I reached out for rehabilitation services. Just the process of learning new skills like walking with a white cane and reading with a video magnifier gave me hope and restored my confidence. It was hard to accept the reality that I needed help. I hid my vision loss for so long and it was frightening to go public with it. But in the end, getting rehabilitation services has been liberating on many levels and the payoff has been well worth it. My adjustment to vision loss continues.